Aniridia is a devastating ocular disease requiring intensive eye care, social and community support from birth and throughout an individual’s lifetime.

Recent News

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Author: aniridia-net

02 Apr 2021

Posted at 21:27h in news by
4 Likes

Following our call for drawings on the Theme “Living with Aniridia”, Aniridia-Net in collaboration with Aniridia Europe has edited and printed beautiful calendars using a selection of all the lovely drawings received (have a look at them here!). We would like to express our gratitude to all the children that contributed with drawings for this initiative. The selection was very tough, as all the drawings were beautiful and presented very inspiring messages. Thanks to our little artists these calendars haves...

01 Apr 2021

Posted at 19:42h in Conference grants by
2 Likes

This is our third ITC-CG Call for budget period 2021-2022. The selected conference must take place within the grant period (1stMay2021 to 31stMarch2022) and always within the Action’s lifetime. Find further information and application guidelines HERE. For more information, contact ANIRIDIA-NET ITC-CG Coordinator: Prof. Sara XAPELLI (sxapelli@medicina.ulisboa.pt). ...

01 Apr 2021

Posted at 19:36h in Conference grants by
1 Like

This is our second ITC-CG Call for budget period 2020-2021. The selected conference must take place within the grant period (1stMay2020 to 31stMarch2021) and always within the Action’s lifetime. Find further information and application guidelines HERE. For more information, contact ANIRIDIA-NET ITC-CG Coordinator: Prof. Sara XAPELLI (sxapelli@medicina.ulisboa.pt). ...

01 Apr 2021

Posted at 18:01h in news by
4 Likes

Organized by Aniridia Europe, with the participation of COST Action ANIRIDIA-NET Chair Prof. Neil Lagali (from the University of Linköping, Sweden) and Vice Chair Prof. Dr Claus Cursiefen (from the University of Cologne, Germany), this live webinar presented the goals and strategies of the ANIRIDIA-NET COST Action, as well as the most significant steps being taken to improve treatment and stimulate research in this disease. Comprising members from over 30 countries in Europe and beyond, ANIRIDIA-NET is the biggest research network focusing on aniridia in the world. This...

19 Mar 2021

Posted at 18:30h in news by
5 Likes

A budget of 1.4 million € has been recently granted by the EJP RD (for European Joint Research Program on Rare Diseases) to continue to push forward research on the treatment of aniridia-associated keratopathy (AAK), which is the most difficult part of the disease to treat. The AAK-INSIGHT project was proposed by a consortium of researchers from several countries, led by Prof. Neil Lagali (Linköping University, Sweden) and Prof. Daniel Aberdam (CNRS, Biologie, Inserm-Technion, France). The AAK-INSIGHT project aims to...

26 Feb 2021

Posted at 07:09h in news by
5 Likes

AniridiaNet #CA18116 action in cooperation with Aniridia Europe are happy to present this short awareness video, hoping it may help understand this rare and complex eye disorder, while INSPIRING RESEARCH efforts in the hopes of improving its diagnosis and treatment. Aniridia patients are unique, help us shape their future! Share this video and SUPPORT the community! Our special thank you to Dr. Christina Grupcheva from Medical University of Varna @MU_Varna_Press, @ScitoonsSpain, and the patients and families involved in the production of this video. ...

21 Nov 2020

Posted at 19:33h in meetings, news by
4 Likes

On the 26th of October AniridiaNet COST Action CA#18116 members connected for the action’s 4th MC meeting taking place fully online. A highly successful meeting that gathered ophthalmologist, researchers, industry and patient’s organizations members from 22 countries. Thank all the members for their enthusiastic participation in discussing the current progress of the action and stimulating a closer collaboration for improved understanding of aniridia and related eye disorders. ...

21 Nov 2020

Posted at 17:56h in news, STSMs by
4 Likes

Dr. Gerard Boix Lemonche, a postdoctoral researcher from the University of Udine (Italy), recently returned from a scientific mission in the research group of Prof. Petrovski at the Center for Eye Research of the University of Oslo, Norway. The purpose of this fruitful mission was for him to gain hands-on technical experience in the production of bioengineered 3D corneal scaffolds, as well as in the isolation of corneal stromal and limbal epithelial stem cells from leftover donor corneas. This training...

24 Jun 2020

Posted at 10:52h in news by
6 Likes

Summer is officially here, and that means that kids will have lots of time to get out the paints, pencils, and crayons and become little artists. To encourage this creativity, Aniridia-Net COST Action is inviting children with aniridia or their friends or relations to draw something creative relating to their experience with aniridia. The winning drawings will be used in the design of 2021 calendars and their little authors will get a printed copy of it! We hope that...

29 May 2020

Posted at 06:18h in news by
4 Likes

Last 14th & 15th may, during the Annual European Conference on Rare Diseases & Orphan Drugs (ECRD), Ivana Kildsgaard, Swedish member of Aniridia Europe and active ANIRIDIA-NET participant, presented an online poster about CA18116 action’s goals and strategic plan towards improving clinical management and research in aniridia patients. Organised by EURORDIS and co-organised by Orphanet and the DIA, the ECRD conference is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation...