Aniridia is a devastating ocular disease requiring intensive eye care, social and community support from birth and throughout an individual’s lifetime.

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19 May 2022

Posted at 18:34h in news by
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Aniridia-Net and Aniridia Europe are happy to announce this new webinar on the regulatory framework of orphan medicional products, presented by Dr. Gloria M. Palomo (Non-Clinical Assessor for the Spanish Medicines Agency), and hosted by Dolores Pérez (Clinical documentation & Advanced Therapy Unit Head, Sermes CRO). Save the date for this meeting with science and aniridia! Friday 20th May 2022 at 13:00 CEST, live streamed in Aniridia Europe’s YouTube Channel There are currently more than 30 million people in the European Union affected by one of the more than 6,000 rare diseases identified to date. There are very few medicines intended for the treatment of rare diseases. To foster development in this area, the European Union's...

18 Oct 2021

Posted at 06:27h in news by
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Aniridia-Net and Aniridia Europe are happy to announce this new webinar on aniridia, recommended to an audience of professionals working in the field. The speakers, Dr. Juan Álvarez de Toledo (Centro de Oftalmología Barraquer, Barcelona, Spain) and Dr. Paolo Rama (Ospedale San Raffaele, Milan, Italy) have been working since many years with aniridic patients and have a relevant expertise in the field. They belong to Aniridia Europe’s Scientific committee. Introduced by Dr. Giulio Ferrari (Ospedale San Raffaele, Milan, Italy, and a member of the Aniridia-Net Management Committee) they will address the following questions: What is emerging as the most relevant pathologic alteration in aniridia eyes? What can this teach us about inflammation and its management...

18 May 2021

Posted at 18:06h in news by
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Limbal stem cells, are a type of stem cells located in a protected area or “niche” of the border between the cornea and the sclera (the white of the eye). These cells have special characteristics that make them essential for the maintenance of the corneal transparency and therefore for optimal vision. Limbal stem cells (often abbreviated as LSCs) have high proliferative potential as well as the ability to regenerate the corneal epithelium following any damage caused by eyelids, tears or trauma. Also, these cells prevent the white tissue from migrating on to the surface of the cornea. In this webinar presented by Ruby Shalom-Feuerstein and Daniel Aberdam, we will learn a little more about the characteristics, behavior, and specific needs of limbal stem cells, as well as of...

18 May 2021

Posted at 17:35h in news, training-schools by
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COST Association - European Cooperation in Science and Technology through COST Action #18116 @AniridiaNet is glad to host its first e-Training School on Ocular Surface Disease. Don't miss out on this exceptional opportunity to learn first-hand, from a panel of international scientists and clinical researchers, on the workings of ocular surface imaging, lens and prothesis and ocular surface surgery. Register now to attend to this free all-virtual training program hosted by Vito Romano (from the University of Liverpool). https://esaso.online/join/ Find the training school program HERE. ...

09 May 2021

Posted at 19:30h in news by
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Aniridia-Net COST Action in association with AniridiaEurope are glad to announce the second in the live webinar series aiming to disseminate knowledge and news about aniridia. Hosted by Daniel Aberdam (Head of Research in INSERM – Paris), this webinar will give the floor to Ruby Shalom Feuerstein (Professor in Technion - Israel Institute of Technology), to bring us insights on the relevance of stem cells for eye functioning. With the title “Eyes open on stem cells dynamics, signature and niche”, this webinar will be live streamed through Aniridia Europe's YouTube Channel and it is recommended for professionals working in the field. Wednesday 26th May 2021 at 18:00 CEST, save the date for this meeting with science and aniridia. ...