Aniridia is a devastating ocular disease requiring intensive eye care, social and community support from birth and throughout an individual’s lifetime.

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Core Group

Core Group

Action Chair - Assoc. Prof. Neil LAGALI

Affiliation: Department of Ophthalmology, Faculy of Medicine, Linköping University, 581 83 Linköping, (SWEDEN)
Website: https://liu.se/en/research/cornea-research
Email: coordination@aniridia-net.eu

Participation in other COST actions:

Action Vice Chair and Grant Holder Scientific Representative - Prof Claus CURSIEFEN

Affiliation: Zentrum für Augenheilkunde – Department of Ophthalmology, Universitätsklinikum Köln – University of Cologne. Kerpener Str. 62, 50937 Köln (GERMANY)
Website: http://augenklinik.uk-koeln.de
Research group website: http://www.for2240.de/
Email: management@aniridia-net.eu

Participating in other COST Actions:

Administrative Coordinator - Kamila SZPARLO

Affiliation: University of Cologne. Kerpener Str. 62, 50937 Köln (GERMANY)
Email: kamila.szparlo@uk-koeln.de

WG 1 Clinical Guidelines Leader - Prof Dominique BREMOND-GIGNAC

Affiliation 1: University Hospital Necker Enfants Malades, APHP. 149 rue de Sèvres, 75015 Paris (FRANCE)
Affiliation 2: Clinical Research Center CLAIROP n°48 – INSERM Unit UMRS1138, Team 17.
Affiliation 3: Paris V René Descartes University
Email: wg1@aniridia-net.eu

WG 2 Clinical and Cohort Studies Leader - Dr Vito ROMANO

Affiliation & Address: Royal Liverpool University Hospital
Prescot Street
United Kingdom
Liverpool
Email: vito.romano@gmail.com

WG 3 Stem cells and Regenerative Medicine Leader - Dr Stefano FERRARI

Affiliation: Fondazione Banca degli Occhi del Veneto (The Veneto Eye Bank Foundation), Via Paccagnella 11. c/o Padiglione Giovanni Rama, 30174 Venice (ITALY)
Website: https://www.fbov.org/
Research group website: https://research.fbov.org/
Email: stefano.ferrari@fbov.it

Participating in other COST Actions:

WG 4 Transplantation, Inflammation and Immunity - Dr Davide BORRONI

Affiliation & Address: RSU Riga Stradins University
Dzierciema iela 11
Latvia
Riga
Email: info.borroni@gmail.com

WG 5 Aniridia models for collaborative research Leader - Prof Daniel ABERDAM

Affiliation: INSERM U976, Hôpital Saint-Louis. Avenue Claude Vellefaux 1, Pavillon Bazin, 75475 Paris Cedex 10 (FRANCE)
Website: https://skinstemdev.simdif.com/
Email: daniel.aberdam@inserm.fr

Participating in other COST Actions:

WG 6 Patient-driven research - Prof Christina GRUPCHEVA

Affiliation: Department of Ophthalmology and Visual Sciences, Medical University – Varna (BULGARIA)
Website: http://mu-varna.bg/EN/AboutUs/Medicine/Pages/Christina-Nikolova-Grupcheva.aspx
Email: wg6@aniridia-net.eu

Participating in other COST Actions:

Science Communication Manager - Dr Juliana MARTÍNEZ-ATIENZA

Affiliation: Andalusian Network for the Design and Translation of Advanced Therapies (former Andalusian Initiative for Advanced Therapies) thorough the Andalusian Progress and Health Public Foundation. Avda. Américo Vespucio 15, 41092 Seville (SPAIN)
Website: http://terapiasavanzadas.junta-andalucia.es/index.php/es/
Email: juliana.martinez@juntadeandalucia.es

STSM Coordinator - Prof. Thomas RITTER

Affiliation: Regenerative Medicine Institute (REMEDI), School of Medicine – College of Medicine, Nursing and Health Sciences. Biomedical Sciences | BSB 1-022 Newcastle Road, National University of Ireland Galway. Galway H91 W2TY (IRELAND)
E-mail: thomas.ritter@nuigalway.ie
Website: http://www.nuigalway.ie/our-research/people/thomasritter/

Participating in other COST Actions:

Training Coordinator - Dr Rozaliya HRISTOVA

Affiliation: Medical University Sofia, University Hospital Alexandrovska, Sofia (BULGARIA)
E-mail: alleta@abv.bg
Website: http://www.mu-sofia.bg/en/

ITC Conference Manager - Prof Sara XAPELLI

Affiliation: Instituto de Farmacologia e Neurociências and Instituto de Medicina Molecular João Lobo Antunes, Faculdade de Medicina, Universidade de Lisboa, Lisboa (PORTUGAL)
Website: https://imm.medicina.ulisboa.pt/pt/
E-Mail: sxapelli@medicina.ulisboa.pt

Participating in other COST Actions: