Aniridia is a devastating ocular disease requiring intensive eye care, social and community support from birth and throughout an individual’s lifetime.

Recent News

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Members

Action Leadership Positions

Action Chair - Dr Neil LAGALI

Affiliation: Department of Ophthalmology, Faculy of Medicine, Linköping University, 581 83 Linköping, (SWEDEN)
Website: https://liu.se/en/research/cornea-research
Email: coordination@aniridia-net.eu

Participating Actions:

Action Vice Chair and Grant Holder Scientific Representative - Prof Claus CURSIEFEN

Affiliation: Zentrum für Augenheilkunde – Department of Ophthalmology, Universitätsklinikum Köln – University of Cologne. Kerpener Str. 62, 50937 Köln (GERMANY)
Website: http://augenklinik.uk-koeln.de
Research group website: http://www.for2240.de/
Email: management@aniridia-net.eu

Participating Actions:

Financial Scientific and Administrative Coordinator - Kamila SZPARLO

Affiliation: University of Cologne. Kerpener Str. 62, 50937 Köln (GERMANY)
Email: kamila.szparlo@uk-koeln.de
Alternative email: administration@aniridia-net.eu

Participating Actions:

WG 1 Clinical Guidelines - Prof Dominique BREMOND-GIGNAC

Affiliation 1: University Hospital Necker Enfants Malades, APHP. 149 rue de Sèvres, 75015 Paris (FRANCE)
Affiliation 2: Clinical Research Center CLAIROP n°48 – INSERM Unit UMRS1138, Team 17.
Affiliation 3: Paris V René Descartes University
Email: wg1@aniridia-net.eu

Participating Actions:

WG 2 Clinical and Cohort Studies - Dr Vito ROMANO

Affiliation & Address: Royal Liverpool University Hospital
Prescot
United Kingdom
Liverpool
Email: vito.romano@gmail.com

Participating Actions:

WG 3 Stem cells and Regenerative Medicine - Dr Stefano FERRARI

Affiliation: Fondazione Banca degli Occhi del Veneto (The Veneto Eye Bank Foundation), Via Paccagnella 11. c/o Padiglione Giovanni Rama, 30174 Venice (ITALY)
Website: https://www.fbov.org/
Research group website: https://research.fbov.org/
Email: stefano.ferrari@fbov.it

Participating Actions:

WG 4 Transplantation, Inflammation and Immunity - Dr Davide BORRONI

Affiliation & Address: RSU Riga Stradins University
Dzierciema iela 11
Latvia
Riga
Email: info.borroni@gmail.com

Participating Actions:

WG 5 Aniridia models for collaborative research - Prof Daniel ABERDAM

Affiliation: INSERM U976, Hôpital Saint-Louis. Avenue Claude Vellefaux 1, Pavillon Bazin, 75475 Paris Cedex 10 (FRANCE)
Website: https://skinstemdev.simdif.com/
Email: daniel.aberdam@inserm.fr

Participating Actions:

WG 6 Patient-driven research - Prof Christina GRUPCHEVA

Affiliation: Department of Ophthalmology and Visual Sciences, Medical University – Varna (BULGARIA)
Website: http://mu-varna.bg/EN/AboutUs/Medicine/Pages/Christina-Nikolova-Grupcheva.aspx
Email: wg6@aniridia-net.eu

Participating Actions:

Grant Holder Scientific Representative - Prof Claus CURSIEFEN

Affiliation & Address: Universitätsklinikum Köln (AöR)
Kerpener Str. 62
Germany
Köln
Email: claus.cursiefen@uk-koeln.de

Participating Actions:

Science Communication Manager - Dr Juliana MARTÍNEZ-ATIENZA

Affiliation: Andalusian Network for the Design and Translation of Advanced Therapies (former Andalusian Initiative for Advanced Therapies) thorough the Andalusian Progress and Health Public Foundation. Avda. Américo Vespucio 15, 41092 Seville (SPAIN)
Website: http://terapiasavanzadas.junta-andalucia.es/index.php/es/
Email: juliana.martinez@juntadeandalucia.es

Participating Actions:

STSM Coordinator - Prof Thomas RITTER

Affiliation: Regenerative Medicine Institute (REMEDI), School of Medicine – College of Medicine, Nursing and Health Sciences. Biomedical Sciences | BSB 1-022 Newcastle Road, National University of Ireland Galway. Galway H91 W2TY (IRELAND)
E-mail: thomas.ritter@nuigalway.ie
Website: http://www.nuigalway.ie/our-research/people/thomasritter/

Participating Actions:

ITC Conference Manager - Prof Sara XAPELLI

Affiliation: Instituto de Farmacologia e Neurociências and Instituto de Medicina Molecular João Lobo Antunes, Faculdade de Medicina, Universidade de Lisboa, Lisboa (PORTUGAL)
Website: https://imm.medicina.ulisboa.pt/pt/
E-Mail: sxapelli@medicina.ulisboa.pt

Participating Actions:

Management Committee – MC Members

Austria - Dr Bernhard STEGER

Affiliation & Address: Medical University of Innsbruck
Anichstrasse 35
Austria
Innsbruck
Email: bernhard.steger@i-med.ac.at

Participating Actions:

Belgium - Dr Elke KREPS

Affiliation & Address: Ghent University Hospital
Corneel Heymanslaan 10
Belgium
Ghent
Email: elke.kreps@ugent.be

Participating Actions:

Belgium - Prof Marie-José TASSIGNON

Affiliation & Address: University of Antwerp // Antwerp University Hospital
Antwerp University Hospital
Department of Ophthalmology
Wilrijkstraat 10
Belgium
Edegem
Email: marie-jose.tassignon@uza.be

Participating Actions:

Bulgaria - Prof Christina GRUPCHEVA

Affiliation & Address: Medical University
15 Doyran St
Bulgaria
Varna
Email: cgrupcheva@gmail.com

Participating Actions:

Bulgaria - Prof Ivan TANEV

Affiliation & Address: Medical University
1st Georgi Sogiyski str.
Sofia
Bulgaria
Sofia
Email: itanev@skycode.com

Participating Actions:

Cyprus - Dr Eleni LOUKIANOU

Participating Actions:

Denmark - Mr Anders IVARSEN

Affiliation & Address: Aarhus University Hospital
Palle Juul Jensens Boulevard
Denmark
Aarhus N
Email: andiva@rm.dk

Participating Actions:

Denmark - Prof Jesper HJORTDAL

Affiliation & Address: Aarhus University Hospital
Nørrebrogade
Denmark
Aarhus C
Email: jesper.hjortdal@dadlnet.dk

Participating Actions:

Estonia - Dr Eneli OITMAA

Affiliation & Address: Asper Biogene LLC
Vaksali 17A
Estonia
Tartu
Email: eneli.oitmaa@asperbio.com

Participating Actions:

Estonia - Dr Laura MAURING

Participating Actions:

Finland - Dr Frederic MICHON

Affiliation & Address: University of Helsinki
Vikki Biocenter 1B
Viikinkaari 9
Finland
Helsinki
Email: frederic.michon@helsinki.fi

Participating Actions:

Finland - Dr Heli SKOTTMAN

Affiliation & Address: University of Tampere
Biokatu 12
Finland
Tampere
Email: heli.skottman@tuni.fi

Participating Actions:

France - Prof Daniel ABERDAM

Affiliation & Address: INSERM
Hopital St-Louis
1, Av Vellefaux
France
Paris
Email: daniel.aberdam@inserm.fr

Participating Actions:

France - Prof Dominique BREMOND-GIGNAC

Affiliation & Address: University Hospital Necker Enfants malades / Paris V Descartes University
Ophthalmology University Hospital Necker Enfants malades 149 rue de sèvres
France
PARIS
Email: dominique.bremond@aphp.fr

Participating Actions:

Germany - Dr Lorenz LATTA

Affiliation & Address: Department of Ophthalmology
Kirrbergerstraße 100
Geb. 22
Germany
Homburg/Saar
Email: lorenz.latta@uks.eu

Participating Actions:

Germany - Prof Claus CURSIEFEN

Affiliation & Address: Universitätsklinikum Köln (AöR)
Kerpener Str. 62
Germany
Köln
Email: claus.cursiefen@uk-koeln.de

Participating Actions:

Greece - Dr Argyrios TZAMALIS

Affiliation & Address: Aristotle University of Thessaloniki
Papageorgiou General Hospital
Greece
Thessaloniki
Email: argyriostzamalis@yahoo.com

Participating Actions:

Hungary - Dr Erika MAKA

Affiliation & Address: Semmelweis University
Maria str. 39
Hungary
Budapest
Email: dr.maka.erika@gmail.com

Participating Actions:

Hungary - Prof Nora SZENTMARY

Affiliation & Address: Department of Ophthalmology, Semmelweis University
Mária utca 39.
Hungary
Budapest
Email: nora.szentmary@uks.eu

Participating Actions:

Ireland - Dr Mark AHEARNE

Affiliation & Address: Trintiy College Dublin
152-160 Pearse Street
Ireland
Dublin
Budapest
Email: ahearnm@tcd.ie

Participating Actions:

Ireland - Prof Thomas RITTER

Affiliation: Regenerative Medicine Institute (REMEDI), School of Medicine – College of Medicine, Nursing and Health Sciences. Biomedical Sciences | BSB 1-022 Newcastle Road, National University of Ireland Galway. Galway H91 W2TY (IRELAND)
E-mail: thomas.ritter@nuigalway.ie
Website: http://www.nuigalway.ie/our-research/people/thomasritter/

Participating Actions:

Israel - Dr Arie MARCOVICH

Affiliation & Address: Kaplan medical center
Hagalil street
Israel
Rehovot
Email: arie.marcovich@gmail.com

Participating Actions:

Israel - Prof Ruby SHALOM-FEUERSTEIN

Participating Actions:

Italy - Dr Stefano FERRARI

Affiliation & Address: Fondazione Banca degli Occhi del Veneto ONLUS
Via Paccagnella 11
c/o Padiglione G Rama
Fondazione Banca degli Occhi del Veneto ONLUS
Italy
Zelarino (Venezia)
Email: stefano.ferrari@fbov.it

Participating Actions:

Italy - Prof Claudio NASTRUZZI

Dipartimento di Scienze Chimiche e Farmaceutiche
Università di Ferrara
Via Luigi Borsari 46 – 44122 Ferrara, Italy.
Email: nas@unife.it

Participating Actions:

Latvia - Dr Davide BORRONI

Affiliation & Address: RSU Riga Stradins University
Dzierciema iela 11
Latvia
Riga
Email: info.borroni@gmail.com

Participating Actions:

Malta - Ms Lorinda CAMILLERI

Participating Actions:

Netherlands - Dr Jo Huiqing ZHOU

Affiliation & Address: Radboud University
Geert Grooteplein 26/28
Netherlands
Nijmegen
Email: j.zhou@science.ru.nl

Participating Actions:

Netherlands - Dr Mor DICKMAN

Affiliation & Address: Maastricht University
P. Debyelaan 25
Netherlands
Maastricht
Email: mor.dickman@mumc.nl

Participating Actions:

Norway - Dr Erlend Christoffer Sommer LANDSEND

Affiliation & Address: Oslo University Hospital
Kirkeveien
Norway
Oslo
Email: elandsend@gmail.com

Participating Actions:

Norway - Ms Hilde R. PEDERSEN

Affiliation & Address: Univerity of South-Eastern Norway
Hasbergs vei 36
Norway
Kongsberg
Email: hilde.r.pedersen@usn.no

Participating Actions:

Poland - Dr Bogumil WOWRA

Affiliation & Address: Univerity of South-Eastern Norway
Hasbergs vei 36
Norway
Kongsberg
Email: bogumilwowra@gmail.com

Participating Actions:

Poland - Prof Edward WYLEGALA

Affiliation & Address: Medical University of Silesia
Panewnicka
Poland
Katowice
Email: wylegala@gmail.com

Participating Actions:

Portugal - Prof Sara XAPELLI

Affiliation: Instituto de Farmacologia e Neurociências and Instituto de Medicina Molecular João Lobo Antunes, Faculdade de Medicina, Universidade de Lisboa, Lisboa (PORTUGAL)
Website: https://imm.medicina.ulisboa.pt/pt/
E-Mail: sxapelli@medicina.ulisboa.pt

Participating Actions:

Portugal - Prof Susana SOLA

Affiliation & Address: Faculty of Pharmacy, University of Lisbon
Av. Prof. Gama Pinto
Portugal
Lisbon
Email: susana.sola@ff.ul.pt

Participating Actions:

Serbia - Dr Svetlana STANOJLOVIC

Affiliation & Address: School of Medicine, University of Belgrade Serbia
Pasterova 2
Serbia
Belgrade
Email: stanojlovic.svetlana@gmail.com

Participating Actions:

Slovenia - Marko HAWLINA

Participating Actions:

Slovenia - Prof Uros CVELBAR

Affiliation & Address: Jozef Stefan Institute
Jamova cesta 39
Slovenia
Ljubljana
Email: uros.cvelbar@guest.arnes.si

Participating Actions:

Spain - Ms Miriam BARBANY RODRIGUEZ

Affiliation & Address: Instituto de Microcirugía Ocular
Carrer Josep Maria Lladó, 3
Spain
Barcelona
Email: barbany@imo.es

Participating Actions:

Spain - Dr Juliana MARTÍNEZ-ATIENZA

Andalusian Network for the Design and Translation of Advanced Therapies thorough the Andalusian Progress and Health Public Foundation. Avda. Americo Vespucio 15, 41092 Seville (SPAIN)
Website: http://terapiasavanzadas.junta-andalucia.es/index.php/es/
Email: juliana.martinez@juntadeandalucia.es

Participating Actions:

Sweden - Ms Ivana KILDSGAARD

Affiliation & Address: Tengbom
Katarinavägen 15
Sweden
Stockholm
Email: ivana.kildsgaard@tengbom.se

Participating Actions:

Turkey - Prof Halil Murat AYDIN

Affiliation & Address: Hacettepe University
Bioengineering Division
Beytepe
Turkey
Ankara
Email: hmaydin@hacettepe.edu.tr

Participating Actions:

Turkey - Prof Yasar Murat ELCIN

Affiliation & Address: Ankara University
Stem Cell Institute and Faculty of Science
Degol Caddesi, Tandogan
Turkey
Ankara
Email: elcinmurat@gmail.com

Participating Actions:

United Kingdom - Dr Vito ROMANO

Affiliation & Address: Royal Liverpool University Hospital
Prescot
United Kingdom
Liverpool
Email: vito.romano@gmail.com

Participating Actions:

United Kingdom - Prof Julie DANIELS

Affiliation & Address: UCL
1-43 Bath Street
United Kingdom
London
Email: j.daniels@ucl.ac.uk

Participating Actions:

Management Committee – MC Substitutes

Austria - Dr Christoph PALME

Affiliation & Address: Tirol Kliniken
Anichstrasse 35
Austria
Innsbruck
Email: christoph.palme@alumni.pmu.ac.at

Participating Actions:

Bulgaria - Dr Asen VELKOV

Affiliation & Address: Tissue bank Bioregeneration
Blaga vest №3
Bulgaria
Sofia
Email: a.velkov@bioregeneration.bg

Participating Actions:

Bulgaria - Dr Rozaliya HRISTOVA

Affiliation: Medical University Sofia, University Hospital Alexandrovska, Sofia (BULGARIA)
E-mail: alleta@abv.bg
Website: http://www.mu-sofia.bg/en/

Participating Actions:

Denmark - Dr Chris Bath SØNDERGAARD

Affiliation & Address: Aalborg University Hospital
Hobrovej 18-22
Denmark
Aalborg
Email: c.bath@me.com

Participating Actions:

Denmark - Dr Stine Elkjaer NIELSEN

Affiliation & Address: Aarhus University Hospital
Norrebrogade 44
Denmark
Aarhus C
Email: stine.elkjaer@gmail.com

Participating Actions:

Estonia - Dr Anu AASPÕLLU

Participating Actions:

Finland - Dr Ana Cathia MAGALHAES

Participating Actions:

Finland - Dr Tanja ILMARINEN

Affiliation & Address: Tampere University
Arvo Ylpon katu 34
Finland
Tampere
Email: tanja.ilmarinen@tuni.fi

Participating Actions:

France - Dr Isabelle PETIT

Affiliation & Address: INSERM
Hopital Saint-Louis , 1 av Claude Vellefaux
France
PARIS
Email: isabelle.petit@inserm.fr

Participating Actions:

France - Ms Gaëlle JOUANJAN

Affiliation & Address: GÊNIRIS
GENIRIS
France
Malakoff
Email: vicepresidence.geniris@gmail.com

Participating Actions:

Germany - Prof Björn BACHMANN

Participating Actions:

Germany - Prof Barbara KÄSMANN-KELLNER

Affiliation & Address: University of Saarland
Kirrbergerstr. 100
Germany
Homburg
Email: kaesmann@gmail.com

Participating Actions:

Hungary - Dr Mária BAUSZ

Participating Actions:

Hungary - Dr Mária CSIDEY

Participating Actions:

Ireland - Mr Colin HYNES

Affiliation & Address: Irish Blood Transfusion Service
National Blood Centre,
IBTS, James’s Street
Ireland
Dublin
Email: colinhynes@gmail.com

Participating Actions:

Italy - Dr Vincenzo CALAUTTI

Affiliation & Address: University of Turin
Molecular Biotechnology Center
Via Nizza 52
Italy
Torino
Email: vincenzo.calautti@unito.it

Participating Actions:

Italy - Prof Giulio FERRARI

Affiliation & Address: San Raffaele Scientific Institute
Via Olgettina 60
Italy
milan
Email: ferrari.giulio@hsr.it

Participating Actions:

Netherlands - Dr Robert WISSE

Participating Actions:

Norway - Dr Tor UTHEIM

Affiliation & Address: Oslo University Hospital
Kirkeveien 166
0407
Norway
Oslo
Email: utheim2@gmail.com

Participating Actions:

Norway - Prof Goran PETROVSKI

Affiliation & Address: University of Oslo
Kirkeveien 166
Norway
Oslo
Email: goran.petrovski@medisin.uio.no

Participating Actions:

Serbia - Dr Jelica PANTELIĆ

Participating Actions:

Slovenia - Dr Maritna MODIC

Affiliation & Address: Martina Modic
Jamova 39
Slovenia
Ljubljana
Email: martina.modic@ijs.si

Participating Actions:

Slovenia - Dr Sofija ANĐELIĆ

Participating Actions:

Spain - Dr Marta CORTON

Affiliation & Address: Instituto de Investigación Sanitaria
Fundación Jiménez Díaz
Avda Reyes Catolicos, 2
Spain
Madrid
Email: mcorton@fjd.es/a>

Participating Actions:

Spain - Mr Laurent BATAILLE

Affiliation & Address: Vissum Innovation
c/ Cabañal 1
Spain
Alicante
Email: lbataille@vissum.com

Participating Actions:

Spain - Prof Juana GALLAR

Affiliation & Address: Instituto de Neurociencias
Avda. Santiago Ramon y Cajal, 2
Spain
San Juan de Alicante
Email: juana.gallar@umh.es

Participating Actions:

Turkey - Dr Ozlem SENGOZ SIRIN

Affiliation & Address: Mehmet Akif Ersoy University
Mehmet Akif Ersoy Üniversitesi Veteriner Fakültesi Cerrahi Anabilim Dalı ISTIKLAL YERLESKESI
Turkey
BURDUR
Email: sengozozlem@gmail.com

Participating Actions:

United Kingdom - Dr Andrew HOPKINSON

Affiliation & Address: University of Nottingham
Ophthalmology, University of Nottingham
B Floor, Eye and ENT Centre
QMC Campus, Nottingham
United Kingdom
Nottingham
Email: andrew.hopkinson@nottingham.ac.uk

Participating Actions:

United Kingdom - Prof Che CONNON

Affiliation & Address: Newcastle University
Institute of Genetic Medicine
United Kingdom
Newcastle
Email: che.connon@newcastle.ac.uk

Participating Actions:

United Kingdom - Prof Tara MOORE

Affiliation & Address: Ulster University
Cromore Road
United Kingdom
Coleraine
Email: t.moore@ulster.ac.uk

Participating Actions: