Aniridia is a devastating ocular disease requiring intensive eye care, social and community support from birth and throughout an individual’s lifetime.

Recent News

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Author: aniridia-net

07 Aug 2023

Posted at 07:00h in meetings by
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AniridiaNet COST Actions #18116 members and participants got together for the Action’s Final MC/WG meeting taking place at Fondazione Banca degli Occhi del Veneto Onlus, last 29th and 30th June 2023. A highly successful meeting that gathered ophthalmologist, researchers, trainees, industry and patient’s organizations to discuss recent advancements and to foster collaborations for further research in the field of aniridia. Harmonized clinical protocols, aniridia pathophysiology, clinical translation tips, post-transplant immunosuppression and MSCs for eye diseases are some of the topics...

12 Feb 2023

Posted at 21:29h in news, training-schools by
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COST Association - European Cooperation in Science and Technology through COST Action #18116 @AniridiaNet is glad to host its final Training School that will be held in Tampere (Finland) on 5th - 9th June, 2023. This training school is organized by Prof. Heli Skottman and her team and will focus on 3D bioprinting applications and deep phenotyping of cells. Don't miss out on this exceptional opportunity to learn first-hand, from a expert scientists, including theoretetical & hands-on training sessions. Registrations...

10 Sep 2022

Posted at 12:03h in Conference grants by
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This is our fourth ITC-CG Call for budget period 2022-2023. Potential applicants must have confirmed a scientific contribution to the conference (either a speaking slot or a poster presentation) in a topic as listed in ANIRIDIA-NET Memorandum of Undersanding. Applications will be treated in a first-come first-served basis, after checking the suitability of the applicant, the conference and his/her proposal. For more details, contact ANIRIDIA-NET ITC Conference Coordinator: Prof Sara XAPELLI (sxapelli@medicina.ulisboa.pt). Find further information and application guidelines HERE. ...

19 May 2022

Posted at 18:34h in news by
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Aniridia-Net and Aniridia Europe are happy to announce this new webinar on the regulatory framework of orphan medicional products, presented by Dr. Gloria M. Palomo (Non-Clinical Assessor for the Spanish Medicines Agency), and hosted by Dolores Pérez (Clinical documentation & Advanced Therapy Unit Head, Sermes CRO). Save the date for this meeting with science and aniridia! Friday 20th May 2022 at 13:00 CEST, live streamed in Aniridia Europe’s YouTube Channel There are currently more than 30...

18 Oct 2021

Posted at 06:27h in news by
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Aniridia-Net and Aniridia Europe are happy to announce this new webinar on aniridia, recommended to an audience of professionals working in the field. The speakers, Dr. Juan Álvarez de Toledo (Centro de Oftalmología Barraquer, Barcelona, Spain) and Dr. Paolo Rama (Ospedale San Raffaele, Milan, Italy) have been working since many years with aniridic patients and have a relevant expertise in the field. They belong to Aniridia Europe’s Scientific committee. Introduced by Dr. Giulio Ferrari (Ospedale San ...

18 May 2021

Posted at 18:06h in news by
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Limbal stem cells, are a type of stem cells located in a protected area or “niche” of the border between the cornea and the sclera (the white of the eye). These cells have special characteristics that make them essential for the maintenance of the corneal transparency and therefore for optimal vision. Limbal stem cells (often abbreviated as LSCs) have high proliferative potential as well as the ability to regenerate the corneal epithelium following any damage caused by eyelids, tears or trauma. Also, these cells prevent the white...

18 May 2021

Posted at 17:35h in news, training-schools by
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COST Association - European Cooperation in Science and Technology through COST Action #18116 @AniridiaNet is glad to host its first e-Training School on Ocular Surface Disease. Don't miss out on this exceptional opportunity to learn first-hand, from a panel of international scientists and clinical researchers, on the workings of ocular surface imaging, lens and prothesis and ocular surface surgery. Register now to attend to this free all-virtual training program hosted by Vito Romano (from the University of Liverpool). https://esaso.online/join/ Find the training...

09 May 2021

Posted at 19:30h in news by
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Aniridia-Net COST Action in association with AniridiaEurope are glad to announce the second in the live webinar series aiming to disseminate knowledge and news about aniridia. Hosted by Daniel Aberdam (Head of Research in INSERM – Paris), this webinar will give the floor to Ruby Shalom Feuerstein (Professor in Technion - Israel Institute of Technology), to bring us insights on the relevance of stem cells for eye functioning. With the title “Eyes open on stem cells dynamics, signature and niche”,...

18 Apr 2021

Posted at 07:27h in news by
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The Deutsche Ophthalmologische Gesellschaft Annual Congress, held entirely online on october 2020, included an aniridia-focused symposium titled:”Congenital Aniridia: new clinical, genetic and molecular insights from patient cohorts in 5 European countries”. Chaired by Nóra Szentmáry (from the University Saarland) and Neil Lagali (from the University of Linkoping), this symposium provided an update of our current and evolving knowledge of the genetic, clinical, micro-morphological, and molecular aspects of AAK. Opening the session, Barbara Käsmann-Kellner (from the University of Saarland) provided a comprehensive explanation of the broad phenotypic spectrum of...

03 Apr 2021

Posted at 19:34h in news by
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Last year, the World Society for Paediatric Ophthalmology and Strabismus (WSPOS) dedicated its 14ht webinar entirely to aniridia. With the participation of recognized experts from four different countries, including Neil Lagali (from the University of Linkoping, in Sweden), Dr. David Walton (from Massachusetts General Hospital in USA) and Hannah Scanga (from University of Pittsburgh, in USA),  Dr. Dominique Bremond-Gignac and Dr. Ken K. Nischal guide the discussion through the in’s and out’s of genetic testing, phenotype-genotype variability, AAK, glaucoma and...