Aniridia is a devastating ocular disease requiring intensive eye care, social and community support from birth and throughout an individual’s lifetime.

Recent News

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Author: aniridia-net

The Deutsche Ophthalmologische Gesellschaft Annual Congress, held entirely online on october 2020, included an aniridia-focused symposium titled:”Congenital Aniridia: new clinical, genetic and molecular insights from patient cohorts in 5 European countries”. Chaired by Nóra Szentmáry (from the University Saarland) and Neil Lagali (from the University of Linkoping), this symposium provided an update of our current and evolving knowledge of the genetic, clinical, micro-morphological, and molecular aspects of AAK. Opening the session, Barbara Käsmann-Kellner (from the University of Saarland) provided a comprehensive explanation of the broad phenotypic spectrum of...

Last year, the World Society for Paediatric Ophthalmology and Strabismus (WSPOS) dedicated its 14ht webinar entirely to aniridia. With the participation of recognized experts from four different countries, including Neil Lagali (from the University of Linkoping, in Sweden), Dr. David Walton (from Massachusetts General Hospital in USA) and Hannah Scanga (from University of Pittsburgh, in USA),  Dr. Dominique Bremond-Gignac and Dr. Ken K. Nischal guide the discussion through the in’s and out’s of genetic testing, phenotype-genotype variability, AAK, glaucoma and...

Professor Neil Lagali of the Department of Biomedical and Clinical Sciences at LiU and Senior Lecturer Inger Berndtsson at the Department of Education and Special Education, University of Gothenburg, have received an award from the Swedish Association of the Visually Impaired. This prize is awarded to researchers and other professionals who have made significant contributions to increasing understanding of the life situation of visually impaired people. The jury includes representatives from the Swedish Association of the Visually Impaired, the Swedish Ophthalmological Society, the Swedish Optometric...

Following our call for drawings on the Theme “Living with Aniridia”, Aniridia-Net in collaboration with Aniridia Europe has edited and printed beautiful calendars using a selection of all the lovely drawings received (have a look at them here!). We would like to express our gratitude to all the children that contributed with drawings for this initiative. The selection was very tough, as all the drawings were beautiful and presented very inspiring messages. Thanks to our little artists these calendars haves...

This is our third ITC-CG Call for budget period 2021-2022. The selected conference must take place within the grant period (1stMay2021 to 31stMarch2022) and always within the Action’s lifetime. Find further information and application guidelines HERE. For more information, contact ANIRIDIA-NET ITC-CG Coordinator: Prof. Sara XAPELLI (sxapelli@medicina.ulisboa.pt). ...

This is our second ITC-CG Call for budget period 2020-2021. The selected conference must take place within the grant period (1stMay2020 to 31stMarch2021) and always within the Action’s lifetime. Find further information and application guidelines HERE. For more information, contact ANIRIDIA-NET ITC-CG Coordinator: Prof. Sara XAPELLI (sxapelli@medicina.ulisboa.pt). ...

Organized by Aniridia Europe, with the participation of COST Action ANIRIDIA-NET Chair Prof. Neil Lagali (from the University of Linköping, Sweden) and Vice Chair Prof. Dr Claus Cursiefen (from the University of Cologne, Germany), this live webinar presented the goals and strategies of the ANIRIDIA-NET COST Action, as well as the most significant steps being taken to improve treatment and stimulate research in this disease. Comprising members from over 30 countries in Europe and beyond, ANIRIDIA-NET is the biggest research network focusing on aniridia in the world. This...

A budget of 1.4 million € has been recently granted by the EJP RD (for European Joint Research Program on Rare Diseases) to continue to push forward research on the treatment of aniridia-associated keratopathy (AAK), which is the most difficult part of the disease to treat. The AAK-INSIGHT project was proposed by a consortium of researchers from several countries, led by Prof. Neil Lagali (Linköping University, Sweden) and Prof. Daniel Aberdam (CNRS, Biologie, Inserm-Technion, France). The AAK-INSIGHT project aims to...

AniridiaNet #CA18116 action in cooperation with Aniridia Europe are happy to present this short awareness video, hoping it may help understand this rare and complex eye disorder, while INSPIRING RESEARCH efforts in the hopes of improving its diagnosis and treatment. Aniridia patients are unique, help us shape their future! Share this video and SUPPORT the community! Our special thank you to Dr. Christina Grupcheva from Medical University of Varna @MU_Varna_Press, @ScitoonsSpain, and the patients and families involved in the production of this video. ...

On the 26th of October AniridiaNet COST Action CA#18116 members connected for the action’s 4th MC meeting taking place fully online. A highly successful meeting that gathered ophthalmologist, researchers, industry and patient’s organizations members from 22 countries. Thank all the members for their enthusiastic participation in discussing the current progress of the action and stimulating a closer collaboration for improved understanding of aniridia and related eye disorders. ...