Aniridia is a devastating ocular disease requiring intensive eye care, social and community support from birth and throughout an individual’s lifetime.

Recent News

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Publications & More

Find out here ANIRIDIA-NET scientific publications, talks and posters, as well as guidelines for communicating action outcomes

Scientific Articles

Find HERE a Collection of Scientific Articles published COST Action CA18116 ANIRIDIA-NET’s members.

Talks and Posters

European Network for a rare eye disease: ANIRIDIA-NET
Ivana Kildsgaard, Juliana Martínez Atienza, Claus Cursiefen, Neil Lagali.

Presented on the European Conference on Rare Diseases 2020

General public articles

El diagnóstico genético de la aniridia nos acerca a su tratamiento personalizado [Spanish] – Juliana Martínez-Atienza – THE CONVERSATION (esp) – Oct 2020

New rare disase European Network led by Sweden  – Neil Lagali – OFTALMOLOG – Sep 2020


Webinar – Aniridia treatment, research and the ANIRIDIA-NET COST Action.

Neil Lagali, Claus Cursiefen – Aniridia-Net COST Action CA#18116

Ivana Kildsgaard – Aniridia Europe

WSPOS World Wide Webinar 14: Aniridia

Hannah Scanga, David Walton, Neil Lagali, Dominique Brémond-Gignac & Ken K. Nischal.


Webinar – Regulatory Framework on Orphan Medicinal Products for Rare Diseases

Gloria Palomo – Member of COMP-EMA

Dolores Pérez – Sermes CRO /Advanced Therapies Unit


Webinar – Managing Aniridia: Dos and Don’ts from infancy to adulthood.

Dominique Brémond-Gignac – University Hospital Necker Enfants Malades (Paris)

Barbara Kasmann-Kellner – University of Saarland (Homburg)

Webinar – Eyes Open on Stem Cells: Dynamics, Signature and Niche.

Ruby Shalom-Feuerstein – Faculty of Medicine / Technion (Israel)

Daniel Aberdam – INSERM (France)

Webinar – A fresh look on to Aniridia pathophysiology

Paolo Rama – San Raffaele of Milan Hospital

Juan Alvarez De Toledo  – Centro Barraquer Barcelona)

Giulio Ferrari – Aniridia – Net COST Action #CA18116

Aniridia-Net Comic Book

If you need a higher quality version (in English or blank, to edit in other languages) please send your request to Neil Lagali or Juliana Martinez-Atienza.

Comic Script Translations

Useful Links & Information

Acknowledging Cost Funding

All ANIRIDIA-NET members should acknowledge COST funding when communicating their work and results concerning the action. Please visit this website for guidelines and tips on communication and dissemination of COST action outcomes.