Aniridia is a devastating ocular disease requiring intensive eye care, social and community support from birth and throughout an individual’s lifetime.

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meetings

07 Aug 2023

Posted at 07:00h in meetings by
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AniridiaNet COST Actions #18116 members and participants got together for the Action’s Final MC/WG meeting taking place at Fondazione Banca degli Occhi del Veneto Onlus, last 29th and 30th June 2023. A highly successful meeting that gathered ophthalmologist, researchers, trainees, industry and patient’s organizations to discuss recent advancements and to foster collaborations for further research in the field of aniridia. Harmonized clinical protocols, aniridia pathophysiology, clinical translation tips, post-transplant immunosuppression and MSCs for eye diseases are some of the topics...

21 Nov 2020

Posted at 19:33h in meetings, news by
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On the 26th of October AniridiaNet COST Action CA#18116 members connected for the action’s 4th MC meeting taking place fully online. A highly successful meeting that gathered ophthalmologist, researchers, industry and patient’s organizations members from 22 countries. Thank all the members for their enthusiastic participation in discussing the current progress of the action and stimulating a closer collaboration for improved understanding of aniridia and related eye disorders. ...

19 Mar 2020

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AniridiaNet COST Actions #18116 members and participants got together for the Action’s 3rd MC/WG meeting taking place at the Molecular Medicine Institute in Lisbon, last 27th and 28th February 2020, coinciding with Rare Disease Day [www.rarediseaseday.org]. A highly successful meeting that gathered ophthalmologist, researchers, trainees, industry and patient’s organizations to discuss recent advancements and to foster collaborations for further growth and research in the field of aniridia. Culture and assessment of LSC, clinical multicentre studies, harmonized clinical protocols, aniridia pathophysiology,...

25 Sep 2019

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Successful meeting with wide participation of researchers, ophthalmologist, patient’s representatives and special interest groups in the 1st COST Action CA18116 MC/WG meeting celebrated last week in Paris. Grant execution updates, working group advancements as well as interesting scientific discussions were brought together in this aniridia-focused session funded by the COST program....