Aniridia is a devastating ocular disease requiring intensive eye care, social and community support from birth and throughout an individual’s lifetime.

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meetings

AniridiaNet COST Actions #18116 members and participants got together for the Action’s 3rd MC/WG meeting taking place at the Molecular Medicine Institute in Lisbon, last 27th and 28th February 2020, coinciding with Rare Disease Day [www.rarediseaseday.org]. A highly successful meeting that gathered ophthalmologist, researchers, trainees, industry and patient’s organizations to discuss recent advancements and to foster collaborations for further growth and research in the field of aniridia. Culture and assessment of LSC, clinical multicentre studies, harmonized clinical protocols, aniridia pathophysiology,...

Successful meeting with wide participation of researchers, ophthalmologist, patient’s representatives and special interest groups in the 1st COST Action CA18116 MC/WG meeting celebrated last week in Paris. Grant execution updates, working group advancements as well as interesting scientific discussions were brought together in this aniridia-focused session funded by the COST program....