Aniridia is a devastating ocular disease requiring intensive eye care, social and community support from birth and throughout an individual’s lifetime.

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18 May 2021

Posted at 18:06h in news by
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Limbal stem cells, are a type of stem cells located in a protected area or “niche” of the border between the cornea and the sclera (the white of the eye). These cells have special characteristics that make them essential for the maintenance of the corneal transparency and therefore for optimal vision. Limbal stem cells (often abbreviated as LSCs) have high proliferative potential as well as the ability to regenerate the corneal epithelium following any damage caused by eyelids, tears or trauma. Also, these cells prevent the white...

18 May 2021

Posted at 17:35h in news, training-schools by
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COST Association - European Cooperation in Science and Technology through COST Action #18116 @AniridiaNet is glad to host its first e-Training School on Ocular Surface Disease. Don't miss out on this exceptional opportunity to learn first-hand, from a panel of international scientists and clinical researchers, on the workings of ocular surface imaging, lens and prothesis and ocular surface surgery. Register now to attend to this free all-virtual training program hosted by Vito Romano (from the University of Liverpool). https://esaso.online/join/ Find the training...

09 May 2021

Posted at 19:30h in news by
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Aniridia-Net COST Action in association with AniridiaEurope are glad to announce the second in the live webinar series aiming to disseminate knowledge and news about aniridia. Hosted by Daniel Aberdam (Head of Research in INSERM – Paris), this webinar will give the floor to Ruby Shalom Feuerstein (Professor in Technion - Israel Institute of Technology), to bring us insights on the relevance of stem cells for eye functioning. With the title “Eyes open on stem cells dynamics, signature and niche”,...

18 Apr 2021

Posted at 07:27h in news by
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The Deutsche Ophthalmologische Gesellschaft Annual Congress, held entirely online on october 2020, included an aniridia-focused symposium titled:”Congenital Aniridia: new clinical, genetic and molecular insights from patient cohorts in 5 European countries”. Chaired by Nóra Szentmáry (from the University Saarland) and Neil Lagali (from the University of Linkoping), this symposium provided an update of our current and evolving knowledge of the genetic, clinical, micro-morphological, and molecular aspects of AAK. Opening the session, Barbara Käsmann-Kellner (from the University of Saarland) provided a comprehensive explanation of the broad phenotypic spectrum of...

03 Apr 2021

Posted at 19:34h in news by
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Last year, the World Society for Paediatric Ophthalmology and Strabismus (WSPOS) dedicated its 14ht webinar entirely to aniridia. With the participation of recognized experts from four different countries, including Neil Lagali (from the University of Linkoping, in Sweden), Dr. David Walton (from Massachusetts General Hospital in USA) and Hannah Scanga (from University of Pittsburgh, in USA),  Dr. Dominique Bremond-Gignac and Dr. Ken K. Nischal guide the discussion through the in’s and out’s of genetic testing, phenotype-genotype variability, AAK, glaucoma and...

03 Apr 2021

Posted at 06:20h in news by
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Professor Neil Lagali of the Department of Biomedical and Clinical Sciences at LiU and Senior Lecturer Inger Berndtsson at the Department of Education and Special Education, University of Gothenburg, have received an award from the Swedish Association of the Visually Impaired. This prize is awarded to researchers and other professionals who have made significant contributions to increasing understanding of the life situation of visually impaired people. The jury includes representatives from the Swedish Association of the Visually Impaired, the Swedish Ophthalmological Society, the Swedish Optometric...

02 Apr 2021

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Following our call for drawings on the Theme “Living with Aniridia”, Aniridia-Net in collaboration with Aniridia Europe has edited and printed beautiful calendars using a selection of all the lovely drawings received (have a look at them here!). We would like to express our gratitude to all the children that contributed with drawings for this initiative. The selection was very tough, as all the drawings were beautiful and presented very inspiring messages. Thanks to our little artists these calendars haves...

01 Apr 2021

Posted at 18:01h in news by
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Organized by Aniridia Europe, with the participation of COST Action ANIRIDIA-NET Chair Prof. Neil Lagali (from the University of Linköping, Sweden) and Vice Chair Prof. Dr Claus Cursiefen (from the University of Cologne, Germany), this live webinar presented the goals and strategies of the ANIRIDIA-NET COST Action, as well as the most significant steps being taken to improve treatment and stimulate research in this disease. Comprising members from over 30 countries in Europe and beyond, ANIRIDIA-NET is the biggest research network focusing on aniridia in the world. This...

19 Mar 2021

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A budget of 1.4 million € has been recently granted by the EJP RD (for European Joint Research Program on Rare Diseases) to continue to push forward research on the treatment of aniridia-associated keratopathy (AAK), which is the most difficult part of the disease to treat. The AAK-INSIGHT project was proposed by a consortium of researchers from several countries, led by Prof. Neil Lagali (Linköping University, Sweden) and Prof. Daniel Aberdam (CNRS, Biologie, Inserm-Technion, France). The AAK-INSIGHT project aims to...

26 Feb 2021

Posted at 07:09h in news by
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AniridiaNet #CA18116 action in cooperation with Aniridia Europe are happy to present this short awareness video, hoping it may help understand this rare and complex eye disorder, while INSPIRING RESEARCH efforts in the hopes of improving its diagnosis and treatment. Aniridia patients are unique, help us shape their future! Share this video and SUPPORT the community! Our special thank you to Dr. Christina Grupcheva from Medical University of Varna @MU_Varna_Press, @ScitoonsSpain, and the patients and families involved in the production of this video. ...