Aniridia is a devastating ocular disease requiring intensive eye care, social and community support from birth and throughout an individual’s lifetime.

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Presentation of ANIRIDIA-NET at ECRD 2020 conference.

Last 14th & 15th may, during the Annual European Conference on Rare Diseases & Orphan Drugs (ECRD), Ivana Kildsgaard, Swedish member of Aniridia Europe and active ANIRIDIA-NET participant, presented an online poster about CA18116 action’s goals and strategic plan towards improving clinical management and research in aniridia patients. Organised by EURORDIS and co-organised by Orphanet and the DIA, the ECRD conference is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. This 10th edition of ECRD, which took place exclusively online for the first time, was an unprecedented success, with a record 1,500 participants from 57 countries registered and 100+ expert speakers hosted sessions on the 6 conference themes. Doubtlessly, fantastic opportunity for discussion towards a better environment for aniridia patients.

Ivana Kildsgaard, member of Aniridia Europe and poster presenter at ECRD 2020.
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